RESULTS
There were 78 partial or complete responses to the survey. Median age
was 13 years (range 22 months – 24 years), 43% identified as female,
and 71% identified as Caucasian (Table 1). Of the 24 patients receiving
therapy, 8% reported a delay. More participants reported a delay in
surveillance scans (18%) and scheduled appointments (24%). No patients
surveyed chose to delay treatments or suveillance against provider’s
recommendations.
Sixteen percent used our EMR to send messages, and 59.4% had video
visits using Epic© EMR or Zoom. Five percent of participants reported
difficulty getting in touch with the oncology team.
Other care-related questions revealed 22% of participants endorsed fear
about going to the emergency department. A majority of
patients/caregivers (89.7%) felt the institution’s visitor policy
helped keep them safe, and 93.2% felt it helped keep others safe.