loading page

Consensus definition of essential, optimal, and suggested components of a pediatric Sickle Cell Disease Center
  • +15
  • Monica L. Hulbert,
  • Deepa Manwani,
  • Emily Meier,
  • Ofelia Alvarez,
  • R. Clark Brown,
  • Michael U. Callaghan,
  • Andrew Campbell,
  • Thomas Coates,
  • Melissa Frei-Jones,
  • Jane Hankins,
  • Matthew Heeney,
  • Lewis Hsu,
  • Jeffrey Lebensburger,
  • Charles Quinn,
  • Nirmish Shah,
  • Kim Smith-Whitley,
  • Courtney Thornburg,
  • Julie Kanter
Monica L. Hulbert
Division of Pediatric Hematology/Oncology Washington University in St Louis School of Medicine St Louis MO

Corresponding Author:[email protected]

Author Profile
Deepa Manwani
Children's Hospital at Montefiore
Author Profile
Emily Meier
Indiana Hemophilia and Thrombosis Center Inc
Author Profile
Ofelia Alvarez
University of Miami School of Medicine
Author Profile
R. Clark Brown
Children's Healthcare of Atlanta Inc
Author Profile
Michael U. Callaghan
Division of Pediatric Hematology/Oncology Children’s Hospital of Michigan Detroit MI
Author Profile
Andrew Campbell
Children's National Hospital
Author Profile
Thomas Coates
Children's Hospital Los Angeles Children's Center for Cancer and Blood Diseases
Author Profile
Melissa Frei-Jones
Division of Pediatric Hematology/Oncology University of Texas School of Medicine-San Antonio San Antonio TX
Author Profile
Jane Hankins
Department of Hematology St Jude Children’s Research Hospital Memphis TN
Author Profile
Matthew Heeney
Dana Farber/Boston Children’s Cancer and Blood Disorders Center Department of Pediatrics Harvard Medical School Boston MA
Author Profile
Lewis Hsu
University of Illinois Chicago College of Medicine
Author Profile
Jeffrey Lebensburger
Division of Pediatric Hematology/Oncology University of Alabama at Birmingham Birmingham AL
Author Profile
Charles Quinn
Cincinnati Children's Hospital Medical Center
Author Profile
Nirmish Shah
Duke University School of Medicine
Author Profile
Kim Smith-Whitley
The Children's Hospital of Philadelphia
Author Profile
Courtney Thornburg
Rady Children's Hospital San Diego
Author Profile
Julie Kanter
Division of Hematology University of Alabama at Birmingham Birmingham AL
Author Profile

Abstract

Sickle cell disease (SCD) requires coordinated, specialized medical care for optimal outcomes. There are no United States (US) guidelines that define a pediatric comprehensive SCD program. We report a modified Delphi consensus-seeking process to determine essential, optimal, and suggested elements of a comprehensive pediatric SCD center. Nineteen pediatric SCD specialists participated from the US. Consensus was predefined as 2/3 agreement on each element’s categorization. Twenty-six elements were considered essential (required for guideline-based SCD care), ten were optimal (recommended but not required), and five were suggested. This work lays the foundation for a formal recognition process of pediatric comprehensive SCD centers.
18 Jul 2022Submission Checks Completed
18 Jul 2022Assigned to Editor
18 Jul 2022Submitted to Pediatric Blood & Cancer
18 Jul 2022Reviewer(s) Assigned
01 Aug 2022Review(s) Completed, Editorial Evaluation Pending
01 Aug 2022Editorial Decision: Revise Minor
09 Aug 2022Submission Checks Completed
09 Aug 2022Assigned to Editor
09 Aug 20221st Revision Received
12 Aug 2022Review(s) Completed, Editorial Evaluation Pending
12 Aug 2022Editorial Decision: Accept
Jan 2023Published in Pediatric Blood & Cancer volume 70 issue 1. 10.1002/pbc.29961